Parental Perspectives on a Behavioral Health Music Intervention for Adolescent/Young Adult Resilience During Cancer Treatment: Report From the Children's Oncology Group
Journal
Journal of Adolescent Health
Year
2013
Abstract
PURPOSE: This article describes parental perspectives on the helpfulness and meaningfulness of a behavioral health music therapy intervention targeted to adolescents/young adults (AYA) with cancer undergoing stem cell transplantation. We demonstrate how qualitative methods may be used to understand critical aspects of an intervention and mechanisms by which the intervention impacts the target AYA outcomes of resilience and quality of life. METHODS: A qualitative descriptive design was used to obtain parents' perspectives. A maximum-variation purposive sampling technique was used to sample 16 parents whose AYA had been randomized to the intervention group. A semistructured open-ended interview was conducted between 100 and 160 days after the AYA's transplant. RESULTS: Results were grouped into three categories: (1) helpfulness and meaningfulness of the intervention to AYA adjustment to the transplantation experience; (2) helpfulness and meaningfulness of the intervention for parents; and (3) AYA ability to participate in the intervention during the acute phase of transplant. CONCLUSIONS: Parents observed and interacted with their AYA who participated in a targeted behavioral intervention. Thus, parents were able to describe mechanisms through which the intervention was helpful and meaningful for the AYA and indirect personal benefits for themselves. The results suggest the importance of the targeted outcomes identified in the Resilience in Illness Model and mechanisms of action in the Contextual Support Model of Music Therapy, and identify approaches for future study.
Music and Health Institute Terms
Adolescents; Cancer; Invasive Medical Procedures; Music Therapy; Quality of Life; Stem Cell Transplantation
Indexed Terms
Attitude to Health; Parents; Adolescents; Children; Narration; Neoplasms; Qualitative Research; Quality of Life; Resilience, Psychological; Social Support; Stem Cell Transplantation; Stress; United States
Study Type
Case Study; Qualitative Methods
PubMed ID
PMCID: PMC3552240
Document Type
Article
Recommended Citation
Docherty, S. L., Robb, S. L., Phillips-Salimi, C., Cherven, B., Stegenga, K., Hendricks-Ferguson, V., Roll, L., Donovan Stickler, M., & Haase, J. (2013). Parental Perspectives on a Behavioral Health Music Intervention for Adolescent/Young Adult Resilience During Cancer Treatment: Report From the Children's Oncology Group. Journal of Adolescent Health, 52 (2), 170-8. Retrieved from https://remix.berklee.edu/mhi-citations/2061